ADVERTISEMENT

Important scientific discovery

JamieDimonsBalls

Hall of Famer
Gold Member
Jun 28, 2015
18,508
20,934
113
Those with kids know this is hugely important

 
Those with kids know this is hugely important

Be honest, how many times would you wake up in the middle of the night and do one of those "is the chest still moving" tests (still breathing)?
 
Those with kids know this is hugely important

Be honest, how many times would you wake up in the middle of the night and do one of those "is the chest still moving" tests (still breathing)?
Oh it's awful. JDB get a Snoo. It's fantastic. Keeps the baby rockin and asleep and reduces likelihood of SIDS.

Great article. Wonderful news.
 
Oh it's awful. JDB get a Snoo. It's fantastic. Keeps the baby rockin and asleep and reduces likelihood of SIDS.

Great article. Wonderful news.

lol at $2,000 Snoo. Soon they’ll come out with some head deformity issue and the product will be pulled like many of the others.

I’m coping with a swing and bouncer for daytime and good old fashioned swaddle and crib at night.
 
lol at $2,000 Snoo. Soon they’ll come out with some head deformity issue and the product will be pulled like many of the others.

I’m coping with a swing and bouncer for daytime and good old fashioned swaddle and crib at night.
Listen to me. It should cost twenty grand. That's how good it is. Turn the volume up. Start whippin that baby back and forth without you ever getting out of bed. Life changing. Way more sleep. I could have ten more babies
 
Listen to me. It should cost twenty grand. That's how good it is. Turn the volume up. Start whippin that baby back and forth without you ever getting out of bed. Life changing. Way more sleep. I could have ten more babies

lol. I’ve read the reviews and they aren’t as favorable as yours.

PS - when is your next kid due? Has to be soon to take advantage!
 
  • Haha
Reactions: mcmurtry66
Listen to me. It should cost twenty grand. That's how good it is. Turn the volume up. Start whippin that baby back and forth without you ever getting out of bed. Life changing. Way more sleep. I could have ten more babies

biggest issue I have is the baby has to feed every 2-3 hrs for the first couple of weeks. So maybe it’s worth testing a little later on
 
  • Like
Reactions: mcmurtry66
Octomom is definitely hotter than Tulsi. @UncleMark


Inside-Octomom-Nadya-Sulemans-13th-Birthday-Party-for-8-Children.jpg


And with the Latina bloodlines there’s bound to be some soccer talent.
 
Be honest, how many times would you wake up in the middle of the night and do one of those "is the chest still moving" tests (still breathing)?
That's pretty much been our life the past three months - 18 years after our son was born. He was diagnosed with type 1 diabetes in February and things have not been the same since. Most nights we get at least 2-3 alarms from his CGM (continuous glucose monitor), and we're either giving him insulin or (more often) gummy bears/juice. And the foghorn alarm when he's suddenly gone dangerously low - well, let's just say we move pretty damn quick. It's incredibly draining, exacerbated by the fact that he cannot always communicate to us how he is feeling.

Life ain't fair, but we play the hand we are dealt.
 
  • Like
Reactions: larsIU
That's pretty much been our life the past three months - 18 years after our son was born. He was diagnosed with type 1 diabetes in February and things have not been the same since. Most nights we get at least 2-3 alarms from his CGM (continuous glucose monitor), and we're either giving him insulin or (more often) gummy bears/juice. And the foghorn alarm when he's suddenly gone dangerously low - well, let's just say we move pretty damn quick. It's incredibly draining, exacerbated by the fact that he cannot always communicate to us how he is feeling.

Life ain't fair, but we play the hand we are dealt.
Ugh. I'm very sorry to hear that Noodle. Is this your partner in crime for the FCC games?
 
That's pretty much been our life the past three months - 18 years after our son was born. He was diagnosed with type 1 diabetes in February and things have not been the same since. Most nights we get at least 2-3 alarms from his CGM (continuous glucose monitor), and we're either giving him insulin or (more often) gummy bears/juice. And the foghorn alarm when he's suddenly gone dangerously low - well, let's just say we move pretty damn quick. It's incredibly draining, exacerbated by the fact that he cannot always communicate to us how he is feeling.

Life ain't fair, but we play the hand we are dealt.
Yeah it is a rough go. Prayers to you and your family. I believe you have mentioned some of your child's struggles in the past. I have some similar yet different stuff on our end. The scariest thought being, what happens when my wife and I are not around to protect him.

God speed Noodle. I know it isn't easy.
 
  • Like
Reactions: mcmurtry66
Yeah it is a rough go. Prayers to you and your family. I believe you have mentioned some of your child's struggles in the past. I have some similar yet different stuff on our end. The scariest thought being, what happens when my wife and I are not around to protect him.

God speed Noodle. I know it isn't easy.
You just nailed the biggest fear of all.

And one of my incredibly proud ironies is that his older brother leaves for San Diego tomorrow morning for an engineering internship with Dexcom - the company that makes the CGM helping to safeguard his brother's life. He got the internship about two weeks before his brother's diagnosis.
 
That's pretty much been our life the past three months - 18 years after our son was born. He was diagnosed with type 1 diabetes in February and things have not been the same since. Most nights we get at least 2-3 alarms from his CGM (continuous glucose monitor), and we're either giving him insulin or (more often) gummy bears/juice. And the foghorn alarm when he's suddenly gone dangerously low - well, let's just say we move pretty damn quick. It's incredibly draining, exacerbated by the fact that he cannot always communicate to us how he is feeling.

Life ain't fair, but we play the hand we are dealt.
Sorry to hear that Noodle. The father role never ends for good dads.
 
Sorry to hear that Noodle. The father role never ends for good dads.
Thanks. I fall short at times, but I try. The one thing this new ordeal has taught me, once again, is that this world is filled with amazing people who do amazing things for others. The support of his teachers, aides, and healthcare staff at school has been overwhelming, and beyond our wildest dreams. From a young teacher with no medical background whatsoever stepping up to do blood tests and insulin shots within the first few days, to a nurse who retires next Friday running down the high school hallway because of an urgent low alarm on the CGM, well, let's just say there will be a lot of tears flowing that last day of school next week. These teachers and staff deserve medals for what they have done and continue to do - not only for my son, but all of the other students.

And it's not just at school. Angels have shown up in all sorts of places. Like the random pharmacists (at two different places) who have gone above and beyond in helping frustrated parents navigate meds, scrips, and insurance, or simply answering basic questions after one of them lifted up his sleeve to show me his own CGM.

The last three months have been exhausting and, at times, hell. They have also reminded me that the vast majority of people are genuinely good and decent souls. And, joy does not require perfection.
 
Thanks. I fall short at times, but I try. The one thing this new ordeal has taught me, once again, is that this world is filled with amazing people who do amazing things for others. The support of his teachers, aides, and healthcare staff at school has been overwhelming, and beyond our wildest dreams. From a young teacher with no medical background whatsoever stepping up to do blood tests and insulin shots within the first few days, to a nurse who retires next Friday running down the high school hallway because of an urgent low alarm on the CGM, well, let's just say there will be a lot of tears flowing that last day of school next week. These teachers and staff deserve medals for what they have done and continue to do - not only for my son, but all of the other students.

And it's not just at school. Angels have shown up in all sorts of places. Like the random pharmacists (at two different places) who have gone above and beyond in helping frustrated parents navigate meds, scrips, and insurance, or simply answering basic questions after one of them lifted up his sleeve to show me his own CGM.

The last three months have been exhausting and, at times, hell. They have also reminded me that the vast majority of people are genuinely good and decent souls. And, joy does not require perfection.
Beautiful!
 
Thanks. I fall short at times, but I try. The one thing this new ordeal has taught me, once again, is that this world is filled with amazing people who do amazing things for others. The support of his teachers, aides, and healthcare staff at school has been overwhelming, and beyond our wildest dreams. From a young teacher with no medical background whatsoever stepping up to do blood tests and insulin shots within the first few days, to a nurse who retires next Friday running down the high school hallway because of an urgent low alarm on the CGM, well, let's just say there will be a lot of tears flowing that last day of school next week. These teachers and staff deserve medals for what they have done and continue to do - not only for my son, but all of the other students.

And it's not just at school. Angels have shown up in all sorts of places. Like the random pharmacists (at two different places) who have gone above and beyond in helping frustrated parents navigate meds, scrips, and insurance, or simply answering basic questions after one of them lifted up his sleeve to show me his own CGM.

The last three months have been exhausting and, at times, hell. They have also reminded me that the vast majority of people are genuinely good and decent souls. And, joy does not require perfection.
Life isn't fair but he got blessed with a special family and what sounds like a hell of a great support system. Post your seats and what you think on the soccer thread this weekend!
 
That's pretty much been our life the past three months - 18 years after our son was born. He was diagnosed with type 1 diabetes in February and things have not been the same since. Most nights we get at least 2-3 alarms from his CGM (continuous glucose monitor), and we're either giving him insulin or (more often) gummy bears/juice. And the foghorn alarm when he's suddenly gone dangerously low - well, let's just say we move pretty damn quick. It's incredibly draining, exacerbated by the fact that he cannot always communicate to us how he is feeling.

Life ain't fair, but we play the hand we are dealt.
Respect and admiration.
 
Levels of the BChE enzyme were found to be significantly lower in babies who subsequently died of SIDS.

What's next? Find out if it is causitive. Does it lead to death, or is it rather a byproduct / symptom of it? If the latter, it could still be a diagnostic / risk assessment tool. If the former, a drug could emerge.

If it is indeed causitive, then you need to elevate the BChE levels. This might involve blocking the enzymes responsible for its degradation. Or it might be more complicated and you need gene therapy to up its production.

The easier problem to solve in drug discovery is when you have an enzyme that is significantly HIGHER in a disease state. Block the enzyme or block the enzymes that produce the enzyme, and then you get a positive therapeutic effect.

But this is still an important discovery for a medical mystery that causes much heartbreak and anxiety.
 
  • Like
Reactions: zeke4ahs and Noodle
Thanks. I fall short at times, but I try. The one thing this new ordeal has taught me, once again, is that this world is filled with amazing people who do amazing things for others. The support of his teachers, aides, and healthcare staff at school has been overwhelming, and beyond our wildest dreams. From a young teacher with no medical background whatsoever stepping up to do blood tests and insulin shots within the first few days, to a nurse who retires next Friday running down the high school hallway because of an urgent low alarm on the CGM, well, let's just say there will be a lot of tears flowing that last day of school next week. These teachers and staff deserve medals for what they have done and continue to do - not only for my son, but all of the other students.

And it's not just at school. Angels have shown up in all sorts of places. Like the random pharmacists (at two different places) who have gone above and beyond in helping frustrated parents navigate meds, scrips, and insurance, or simply answering basic questions after one of them lifted up his sleeve to show me his own CGM.

The last three months have been exhausting and, at times, hell. They have also reminded me that the vast majority of people are genuinely good and decent souls. And, joy does not require perfection.
You may feel you fall short at times but your love doesn’t and that’s what matters most.

My experience is that the ancillary caretakers care more when the primary caretakers care of the most. That’s a reflection on you and your wife.
 
  • Love
Reactions: Noodle
That's pretty much been our life the past three months - 18 years after our son was born. He was diagnosed with type 1 diabetes in February and things have not been the same since. Most nights we get at least 2-3 alarms from his CGM (continuous glucose monitor), and we're either giving him insulin or (more often) gummy bears/juice. And the foghorn alarm when he's suddenly gone dangerously low - well, let's just say we move pretty damn quick. It's incredibly draining, exacerbated by the fact that he cannot always communicate to us how he is feeling.

Life ain't fair, but we play the hand we are dealt.
Oh gosh I’m so sorry. Missing sleep like that really wears on you after awhile.
 
Circa 1994, after being the first response unit in on a few dead infants, all diagnosed as SIDS deaths later, I chose to investigate a little more of WTF SIDS actually was.
The answers I got was, "when there are no other explanations of death, it's SIDS".
That is a very dark bucket to just place random baby deaths into. It created questions, mentally traumatic doubt, in my mind about everything in our "system".

Those doubts still exist many many years later. Now they are scars. Deep scars.
 
  • Like
Reactions: UncleMark
Oh gosh I’m so sorry. Missing sleep like that really wears on you after awhile.
Belated agreement re: sleep (and thanks), but it paid off today. Our son had his first visit to the endocrinology clinic since his diagnosis three months ago. To our astonishment, his A1C* was 5.5%.

Anything below 5.7% is considered "normal" (i.e., for someone who does not have type 1 diabetes), and the American Diabetes Association recommends below 7.0%. In fact, the doctor suggested we back off slightly on the long acting insulin so that he experiences fewer lows, implying that she would like to see his A1C slightly higher just to be safe.

Now, our son is in what's known as the "honeymoon phase," which often happens after the initial diagnosis. The beta cells remaining in his pancreas woke back up when he first started receiving insulin. So his pancreas is still spitting out some insulin. That will go away at some point (could be 3 months, could be 18 months). But to hear the nurse say, very loudly, 5.5 was incredibly rewarding. I could tell that even the nurses and doctor were very pleasantly surprised.

Now we are (hopefully) moving to the next stage of getting our son on an insulin pump. The latest technology for pumps is phenomenal. The Omnipod pump from Insulet Corp. is tubeless, and about the size of one of those old-fashioned rubber coin purses. It will also wirelessly communicate with his Dexcom continuous glucose monitor (CGM), allowing for semi-automated, closed loop control of the pump. Yes, it would mean no more injections. But for us the more significant benefit is more independence for our son. We would be able to give him his insulin remotely using an our smartphone! Just amazing technology. (Picture at bottom shows someone wearing an Omnipod pump and a Dexcom CGM.)

Of course, none of the above would have been possible without my incredible wife. I (and my kids) are truly blessed.

*A1C is essentially a gauge of your average blood sugar level over the past 3 months.

Freeman-lean.jpeg
 
Belated agreement re: sleep (and thanks), but it paid off today. Our son had his first visit to the endocrinology clinic since his diagnosis three months ago. To our astonishment, his A1C* was 5.5%.

Anything below 5.7% is considered "normal" (i.e., for someone who does not have type 1 diabetes), and the American Diabetes Association recommends below 7.0%. In fact, the doctor suggested we back off slightly on the long acting insulin so that he experiences fewer lows, implying that she would like to see his A1C slightly higher just to be safe.

Now, our son is in what's known as the "honeymoon phase," which often happens after the initial diagnosis. The beta cells remaining in his pancreas woke back up when he first started receiving insulin. So his pancreas is still spitting out some insulin. That will go away at some point (could be 3 months, could be 18 months). But to hear the nurse say, very loudly, 5.5 was incredibly rewarding. I could tell that even the nurses and doctor were very pleasantly surprised.

Now we are (hopefully) moving to the next stage of getting our son on an insulin pump. The latest technology for pumps is phenomenal. The Omnipod pump from Insulet Corp. is tubeless, and about the size of one of those old-fashioned rubber coin purses. It will also wirelessly communicate with his Dexcom continuous glucose monitor (CGM), allowing for semi-automated, closed loop control of the pump. Yes, it would mean no more injections. But for us the more significant benefit is more independence for our son. We would be able to give him his insulin remotely using an our smartphone! Just amazing technology. (Picture at bottom shows someone wearing an Omnipod pump and a Dexcom CGM.)

Of course, none of the above would have been possible without my incredible wife. I (and my kids) are truly blessed.

*A1C is essentially a gauge of your average blood sugar level over the past 3 months.

Freeman-lean.jpeg
Who's the guy with your wife?
 
ADVERTISEMENT
ADVERTISEMENT