Update . . .

[CO. Hoosier]

No, I'm not sure. Neurologist on Nov. 25. I'm No. 25 on the waiting list for a cancelation. I've not been to Emory; I'm in Knoxville.

Home of the movement disorders clinic. Parkinson's mostly. Like Black Dog Fitness here. ts a fitness program that focuses on Parkinson's patients. Boxing, strength mostly.

Thank you for your interest.

Sounds like you could use a medical advocate more than a med mal advocate.

Look for the best provider/institution/school in the country treating Normal pressure hydrocephalus, (Maybe at Vandy?) ask them to review your scans and history and see what happens. If you can get in with a good medical school they might use your case as a teaching opportunity. (That’s what happened with me at the University of Colorado Med schoolI. I was impressed and reassured) .

I know you are getting lots of advice on this board. We are pulling for you.

 

[hookyIU1990]

Boxing?

As in you get to pummel your opponent . . . . Or, you get pummeled, but just the body?

You can’t possibly be taking shots to the head.

Color me perplexed.

It's the physical exertion of the workout, not an actual boxing match.

The aspects of the workout help slow the progression and limit the effects of neurological issues.

 

[Sope Creek]

But 8 wins for IU? Your A/C go out?

D looking good.

Three passes on the first series for IU? Where are we?

A little late . . . but how do you like me now? Can you hear me?

 

[Sope Creek]

It's the physical exertion of the workout, not an actual boxing match.

The aspects of the workout help slow the progression and limit the effects of neurological issues.

For Parkinson's, yes. For NPH, not clear.

BOXING​

Rock Steady Boxing was the first exercise program in the country dedicated to the fight against Parkinson’s disease. Our workouts are non-contact (no one gets hit) adaptations of boxing drills.
The skills for boxing fit the needs of Parkinson’s patients perfectly – agility, speed, balance, reach, endurance, accuracy, coordination, footwork and overall strength. Parkinson’s fighters benefit from the exact same stuff as well as the intensity of a good fight.
Day after day and year after year, Rock Steady Boxing has been proven to be highly effective at slowing the progression and reducing the symptoms of Parkinson’s disease.

 

[stollcpa]

@Sope Creek i couldn’t sleep and for some reason I thought about you. My wife woke as I rustled around. I went to my office and retrieved the book you mailed me a few years ago. I told my wife about the book and what happened to you. She probably thinks I am losing it. Lol. She went back to sleep.

I reread your note that was enclosed with the book “Half Time”. I also read a couple of the chapters again.

Still can’t sleep so may read some more. Don’t know that God hears my prayers but will say one for you tonight. I pray your appointment coming up on the 25th produces positive results for you.

🙏

 

[Sope Creek]

@Sope Creek i couldn’t sleep and for some reason I thought about you. My wife woke as I rustled around. I went to my office and retrieved the book you mailed me a few years ago. I told my wife about the book and what happened to you. She probably thinks I am losing it. Lol. She went back to sleep.

I reread your note that was enclosed with the book “Half Time”. I also read a couple of the chapters again.

Still can’t sleep so may read some more. Don’t know that God hears my prayers but will say one for you tonight. I pray your appointment coming up on the 25th produces positive results for you.

🙏

Thank you Stollpa but my neurologist resigned his practice and the appointment has been canceled. I appreciate the sentiment.

 

[BradStevens]

Thank you Stollpa but my neurologist resigned his practice and the appointment has been canceled. I appreciate the sentiment.

@Sope Creek I thought you had found someone else?

I think I wrote earlier, but I'll rewrite it here: a very good friend's wife had this same problem. She had the shunt put in and her quality of life, balance, and cognitive function have improved dramatically (although still not 100%). He's here in Chicago.

Do you want me to set you two up? Hell, I'll find out who it is and set up the appointment for you myself, if you need it. Don't give up--the worst that can happen is you find out you're in the same position as you are now, but the upside is there, isn't it?

Frontier and Spirit fly between Chicago and Atlanta for cheap, too. If you want to make it happen, I can drive you to where you need to go.

 

[Sope Creek]

I thought you had found someone else?

I think I wrote earlier, but I'll rewrite it here: a very good friend's wife had this same problem. She had the shunt put in and her quality of life, balance, and cognitive function have improved dramatically (although still not 100%). He's here in Chicago.

Do you want me to get you set you two up? Hell, I'll find out who it is and set up the appointment for you myself, if you need it. Don't give up--the worst that can happen is you find out you're in the same position as you are now, but the upside is there, isn't it?

Thank you. I haven't yet found a neurologist. Your wife's friend has a different situation than I have. I think I've said before that my timing doesn't support a shunt. I'm past the shunt stage. I've had a spinal tap already.

 

[BradStevens]

Thank you. I haven't yet found a neurologist. Your wife's friend has a different situation than I have. I think I've said before that my timing doesn't support a shunt. I'm past the shunt stage. I've had a spinal tap already.

By the spinal tap, do you mean that they drained the excess fluid and it didn't help improve your symptoms?